The Myasthenia Gravis Foundation of America (MGFA) is the only national volunteer health agency in the United States dedicated solely to the fight against myasthenia gravis. The MGFA mission is to facilitate the timely diagnosis and optimal care of individuals affected by Myasthenia Gravis and closely related disorders and to improve their lives through programs of patient services, public information, medical research, professional education, advocacy and patient care.
The vision of the Foundation is "A World Without Myasthenia Gravis."
Today a good patient-doctor relationship is a partnership. The most important thing you can do to ensure you get the best quality of care is to be an active partner with your doctor.
Sometimes it can be hard to remember everything that is bothering you during your doctor visit. Using "myMG" application to record your symptoms and other notes about how you are feeling can help you remember how your symptoms changed since your last visit.
Your notes may include any information about activities or anything that makes your symptoms better or worse.
When you are preparing for your doctors visit go to www.myasthenia.org . Here you can print your recent surveys; charts questions and notes.. Once you have printed the information you need from "My MG" you may want to add a few notes to discuss with your doctor:
Make a list any medicines that you are taking (including doses and times).
Note any allergies or reactions you have had to your medications.
List all herbal products you use or alternative treatments you receive.
Note any life changes that have occurred since your last visit because they can affect your health even if you think you are handling it well.
List any new medical event or appointment such as emergency room assessments hospitalization other doctors or specialists since your last visit. Include contact information
Write down any questions you have before your visit. Don\t be afraid to ask questions as you are talking to your doctor. If you dont ask questions your doctor may think you understand everything that was said.
For additional information about talking to your doctor visit